Bug's MRI

AT LAST

We FINALLY got to do her MRI. In October when Bug was first diagnosed with Epilepsy the neurologist told us she needed an MRI, but it had to wait... She had to get medically cleared. What held us up for SO long was her heart murmur. "It's mild, it's benign, it's nothing" is what I was told for most of her life. It would come and go and for over a year I would be told "we'll do more testing if we hear it next time" but then it wouldn't be there... Then it'd come back. For so long I let it go thinking she's healthy, she's acting healthy, if she had a heart issue she wouldn't seem so healthy. The epilepsy diagnosis and then being told she had to be sedated for this MRI changed that.

So, we had to get this murmur issue cleared up. That resulted in us seeing a cardiologist in November and FINALLY putting all the heart murmur issues to rest. She had a full workup, and EKG and an ECHO. And in just over 1 hour, an awesome doctor told us that what we'd been told all along really was true, it's benign. Eventually she will outgrow it, but NO ONE can say when. It will probably come and go for years. She is a skinny kid which makes it easier to hear. And that unless there seemed to be a dramatic change in it, there was no need for her to continue to see a cardiologist regarding it. Just to be aware that it's there.

So FINALLY we scheduled the MRI, for about a month later, first available appointment, and 2 days before Christmas. Right when EVERYONE was visiting. There was a list of rules though... including what would cause me to have to CANCEL the MRI, such as an illness. Because she had to be sedated, even a MINOR illness would cause her to be unfit for it. So we waited...

And a couple days before the MRI she got sick. NO!!! Sure enough, the day before I knew she would NOT be given the green light for it, so I called and cancelled it. We re-scheduled it, but it was over a month away!!! *sigh* She had plenty of time to get healthy! LOL

And she did and stayed healthy. And then I got sick about 5 days ago... and started to worry. She HAD to stay healthy. If I had to cancel this again it'd be another month. But she stayed healthy, and we went. I figured that she appeared healthy enough to me, that at this point, THEY would have to say no!

But they didn't. She was cleared!! And we did it!! She was pretty unhappy about the IV being put in, but once it was in, she was okay. She knocked out pretty easy and BFF and I were allowed to remain in the room with the MRI, with ear plugs! And BOY was I glad for the ear plugs, that sucker was L-O-U-D!!!! Even with the ear plugs!

After the 1 hour or so in the MRI we went to recovery. They were great there. The nurse said they wouldn't even try to wake her for 20 minutes or so if we wanted to get a bite to eat and bring it back. We took advantage of it, we were STARVING!! I was so impressed with how slow and gentle she woke Bug up. Just going for a quick eye opening the first time, a little more the second time, sat her up after that and got her to make eye contact with me and BFF. Each of those times she let Bug go back to sleep. But the next time she sat the bed up more and convinced her that she wanted some juice. We had a very groggy Bug, but and awake Bug! The nurse later described the medication they used for sedation as giving you a similar feeling as drinking quite a bit of alcohol. Shoot, I'd wanna go back to sleep too! LOL

So we got her to drink some juice and eat some Goldfish and then go to the bathroom and we were ready to go! We left and headed for Au Bon Pain in the mall. There's one in the Hospital, but the nurse advised against giving her the soup she was requesting due to the distance of our drive. She was concerned that it would give Bug and upset tummy. So we went to the mall instead, so she didn't have such a long drive home. Then we went to my work to pick up a few things and then finally, to her relief I'm sure, home.

Once I got her all changed and ready she was HAPPY to get into her bed!! The nurse warned me she may wake up all refreshed at 3 am wanting to watch a movie. I hope not. Bug is usually a little more likely to happily take some extra sleep, but if she does, I'll come down to the couch, pop in a movie and let her watch it! LOL

Glad to be home, and heading to bed soon!