And we are out

We were discharged this evening, they cannot figure it out at all. So they discharged us and said to come back if it happens again.

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Back in the Hospital

Bug had an incident yesterday and we are back in the hospital. She had an MRI last night and the good news is they didn't rush her into surgery or straight to the ICU! Instead she was admitted to the neurology floor for monitoring.

We definitely are asking for prayers as the doctors try to get to the bottom of what happened instead of settling for "she seems fine now."

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sick baby update 3

Sunday Morning: Bug woke with another HIGH fever (104.5) and I was at my wits end. I was thinking shouldn't the antibiotics at least be helping to bring the temp down by now?? So down the hatch with MORE motrin, her antibiotics, and her regular daily meds. And into the tub to try to cool her off. And when she finally got some attitude back she and I were sticking tongues out at each other. It was then that I noticed a small sore on the tip of her tongue. I called BFF and showed her. She reminded me that Bug had said the other day that her tongue got "stuck" in her sippy cup.

Shortly after Bug got outta the tub I got a call, from her pediatrician!!! She wanted me to bring Bug in, on a SUNDAY MORNING. We made the arrangements to be there in a little over an hour. We live about 45 minutes from the office, I wasn't dressed yet, and the roads were questionable from the overnight snow. But we got there and saw her. She tells me it is NOT a UTI as diagnosed at Children's. I kinda suspected it wasn't. Nothing grew in the culture. So we could throw out the antibiotics more than likely. She asks all the questions about cough etc. while she's looking her over and I tell her the ONLY thing is I noticed that sore.

She looks in her mouth and nods and says "along with the several small sores on the back of her throat, it makes sense, she has hand foot and mouth" SIGH OF RELIEF. My poor baby is miserable, but I have an answer that makes sense FINALLY. We talked over the 2 biggest issues for Bug with this illness:

-Fever control: She is running HIGH fevers. Fevers are not uncommon with HFM, but high fevers are not so common. Bug has epilepsy which makes the high fevers more dangerous. Her doctor advised us to do piggy backed tylenol/motrin every 3 hours for at least 24 hours straight ROUND THE CLOCK to keep her fever free and give her body a break. Then to let her body have a chance. Last night was the night I got to sleep and I'm about to go wake her and see how she is. Please let's hope she's fever free!!! Or at least low grade. I NEED to get her off the meds because they can hurt her liver as can one of her regular meds and the combo of the two worries me.

-Hydration: The sores in her mouth and throat make her not want to eat and drink. Obviously that is not good. We saw this yesterday. I had to break down and FORCE gatorade down her with a medicine syringe. She was actually pretty good about letting me do it that way!! This tells me the sores IN her mouth are hurting more than the sores in her throat. BFF and her DH said she did better in the evening, and I am grateful for that.

Today is a new day, and I am hoping she is feeling better today. We have appointments for Duck and Peanut to have their eyes looked at again and see if their glasses are helping with the lazy eyes. I'm praying for Peanut especially that it is because if not we are looking at surgery. :(

Stay safe all my friends in the coming weather and I hope you have fun in the snow!!!

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Sick baby update

So after nearly 48 hours of a lethargic and feverish Bug, BFF made the decision that she needed to go to the doctor. Since she was home with her while I was at work, and she could see how she was feeling at that time, I support her decision to call for an appointment. She called me shortly after making the appointment to tell me when it was. I had to leave work early for it, but my daughter will always come first.

We saw one of the nurse practitioners today. I liked her very much. She understood and agreed with why BFF and I chose to NOT give tylenol today. We wanted to try and let her body fight it off. But with the weekend coming and her being my epileptic child, I knew I just couldn't risk it any longer.

The final call was a virus. NOT flu as she has NO symptoms of flu beyond the fever. A strep culture was done as a precaution though her throat looked fine. The NP gave us the go ahead to go to the Children's Hospital laboratory for her regular blood draw. She has to have blood draws on a regular basis for liver function, CBC's, and other things to make sure her medicine for her seizure's isn't harming her. I'd put it off because of the fever. And while we were headed over anyway, the NP added a urinalysis to rule out a UTI. That was the easy part.

Bug had a 102.9 Fever in the doctor's office. But she is fine now. She is playing with the girls and enjoying herself after some pizza. I am sure she will be back to lethargic and feverish in a few more hours, but I am enjoying this while I can. :)

Thank you for your prayers, please continue to pray for her. If it gets too high again we will be heading for the Children's Hospital ER.

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